PPMD 2020 Annual Conference - Wednesday, July 22, 2020 (Full Program)

Wednesday, July 22 6:00 PM - 8:00 PM EDT 16:57 Welcome Address 37:01 COVID-19 and Re-Entry: Where Are We Now? 1:20:34 In the Pipeline: Reducing Inflammation clinical trial discussions Welcome to PPMD’s 2020 Annual Conference – Virtual Edition! This is an extraordinary time for our global community, as we slowly begin re-emerging from the COVID-19 pandemic. During this time, our always resilient community continues to inspire and energize PPMD. Though we can’t connect in person this year, there was no way PPMD could let the summer go without hosting our Annual Conference. So this year, we are gathering virtually! From Wednesday, July 22 – Saturday, July 25, we will be offering the kind of robust, informative agenda you have come to expect from PPMD over the last 25 years. Critical Updates From clinical trial updates, to the latest advances in Duchenne care, to our work in Washington, D.C., and opportunities to engage with families across the country, this year’s Annual Conference will help you catch up on the incredible momentum still happening in our community while simultaneously reconnecting with old friends and making new ones. You will have access to leading researchers, scientists, physicians, clinicians, and therapists, just like always, and there will be numerous opportunities during the week of the meeting to connect with these experts virtually. Social Activities We’re also going to have some fun! The PPMD team is organizing a variety of social activities for the whole family so that your virtual conference has a few surprises, and some much needed laughs. WHAT CAN I EXPECT AT PPMD’S 2020 VIRTUAL ANNUAL CONFERENCE? The 2020 PPMD Virtual Annual Conference will feature presentations on: Gene Therapy Current clinical trials Important care topics Quality of life issues Cardiac implications in Duchenne Carrier health information Preclinical research discussions And a look ahead at promising research strategies and other ways to move the Duchenne landscape, even in the midst of the ongoing health crisis. In addition to conference presentations, panel discussions, and Q&A sessions, PPMD’s 2020 Virtual Annual Conference will include: Dedicated sessions, both social and educational, for newly diagnosed families. Dedicated sessions for teens and adults living with Duchenne The ability to schedule one on one sessions with: Certified Genetic Counselors from The Duchenne Registry A Child Behavioral Educational Specialist Physical Therapists Other experts throughout the conference A robust online poster session providing information on research related to Duchenne Social activities for moms, dads, grandparents and, of course, teens and adults A morning yoga class open to all And interactive trivia sessions to help keep us all on our toes while having a little fun To learn more, visit www.endduchenne.org