Disabled woman put in nursing home against her will says she feels 'betrayed'

A 33-year-old disabled woman says she feels "betrayed, worthless and frightened" after being moved to a nursing home against her will. Lucinda Ritchie previously lived in her own adapted bungalow in Billingshurst, West Sussex. She was admitted to hospital with pneumonia last April, but 10 months later was not allowed to return home. Instead, this February, she was taken to a nursing home in Uckfield - an hour from her home and family. Within two days of being there, her condition deteriorated and she was returned to hospital. NHS Sussex said it was "committed to working with Lucinda and her family to make sure she receives high quality and safe care to meet her needs". Neil Allen, an independent barrister, told the BBC it was "very unusual" for an adult with full mental capacity to be moved to a residential home against their will as it was "totally unlawful". The NHS has denied that funding considerations played any part in the decision-making around Ritchie's care, saying it was based on her clinical safety. But Allen said disputes over the funding of people's healthcare packages were happening up and down the country all the time. "That is a national issue at the moment," he explained. Ritchie has Ehlers-Danlos syndrome, a condition that affects the joints; functional neurological disorder, which impacts her mobility; Addison's disease, a hormonal disorder, and epilepsy. She has a tracheostomy and sometimes uses a ventilator. Able to speak when she was younger, she has primarily used eye-gaze technology to communicate since 2017. Before her hospital admission, Ritchie had 24‑hour one‑to‑one nursing funded in her own home by NHS Continuing Healthcare (CHC). She was studying for a master's in sustainability at Southampton University, as well as acting as a charity ambassador and keynote speaker. In 2023 and 2024 Ritchie was recognised as one of the most influential disabled people in the UK for her pioneering work supporting communication using eye movement. She was admitted to East Surrey hospital last April with pneumonia and suffered further complications which prolonged her stay. She wanted to be discharged back to her own home, but this did not happen. Instead, her mother Christine Ritchie says care commissioners at NHS Sussex All Age Continuing Care (AACC) told them Ritchie would be going to a nursing home. On the day she was transferred, Ritchie told the BBC she was "devastated" and wanted to get back to her own home. More recently, she explained: "In my own home, with my nurses, I feel safe and can see my friends and family easily. "My dad visits me almost daily. I can have meetings easily and I am not dictated to by the home rules or policies." She said living at home gave her agency and control of her own surroundings - and the ability to use a wheelchair-adapted van to go out to events, shopping and university. "Life will not be worth living if I cannot go home," she said. When she was taken from East Surrey Hospital to Temple Grove Nursing Home, Ritchie's mother said her powered wheelchair was "switched off and pushed". "She didn't consent to go," she told the BBC. "It's absolutely horrific." Ritchie said no care plans for the new placement were shared by NHS Sussex AACC with her or her legal team. Her then-solicitor, Andy McKay of Martin Searle Solicitors, said his firm had been trying since autumn to secure "meaningful engagement" from the NHS commissioners about a safe return‑home plan. He argued it would have been safe and viable for Ritchie to return to her own home, where she has had 24/7 nursing for eight years. McKay explained that her established nursing provider had confirmed it could safely continue to meet her complex needs at home, including tracheostomy and intermittent ventilation care. He said he wrote to NHS Sussex AACC to explain this, but that the nursing agency confirmed they were never approached by the care board to ask if they could indeed meet those needs at Ritchie's home. "We've raised th