Ethics in Neurodevelopmental Research - Dr. Liz Pellicano - Neurodiversity Awareness Day 2023

In this video, Professor Liz Pellicano discusses the ethical issues involved in researching neurodevelopmental conditions during Neurodiversity Awareness Day 2023 at Columbia University, emphasizing the importance of conducting research that truly reflects the experiences and needs of neurodivergent individuals. Professor Liz Pellicano has long been committed to transforming autism science so that it more accurately reflects everyday autistic life. She is Professor of Autism Research at University College London (UCL), having recently been Professor at Macquarie University in Sydney, Australia. Previously, she was Professor of Autism Education and Director of the Centre for Research in Autism and Education (CRAE) at UCL Institute of Education. Her most recent research, funded by a Future Fellowship from the Australian Research Council, focuses on bridging the gap between lab and life and increasing the involvement of autistic people in research, with the aim of generating scientific discoveries that bring real benefits to autistic individuals and their families. Neurodivergent @ Columbia is a safe space for neurodivergent students and allies across every school at Columbia and Barnard. The group is dedicated to fostering a culture of ethical practices across all disciplines. They host weekly events such as general meetings, study halls, and club outings to various places around New York City. Additionally, Neurodivergent @ Columbia advocates for policies and research that respect the rights and dignity of all individuals, particularly through various channels including public outreach, academic collaborations, and policy advocacy. The group emphasizes the ethics of biomedical research and societal norms, ensuring that neurodivergent perspectives are integral to these discussions. They are passionate about creating inclusive practices and continuously explore opportunities to engage with peers across the university and beyond. Neurodiversity Awareness Day 2023 was a full day of educational seminars designed to educate and foster communication within the Columbia communities (and beyond) about autism, ADHD, learning disabilities, and other related conditions. The event was co-organized by Ara Bakhteyar and Juliette Gudknecht the co-chairs of the Neurodivergent @ Columbia.The event's goal was to raise awareness and acceptance of neurodevelopmental disabilities while also supporting neurodivergent individuals. This international hybrid event was a huge success, with over 350 registrants this year.